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despite the fact that the function of the immune systems of those boys is a result of
their genetic endowment (Häyry, 2010).
This limitation can be partly addressed if we take ‘normal functioning’ to refer to
‘species-typical functioning.’ This approach was taken by scholars like Sabin and
Daniels (1994; Daniels, 1996) who argued that in determining the natural functional
organization of members of a species it is possible to create a model of normal or
species-typical function. Disease would represent a
statistical deviation from
normal or typical functioning (Sabin and Daniels, 1994; Daniels, 1996). However,
it seems reasonable to assume that disease refers to the state of impaired or indeed
less than optimal function rather than simply a deviation from the average – it
would be rather awkward to say that to be a genius is to have a disease (Pacholczyk
and Harris, 2010).
If disease is a deviation from species-typical functioning, treatment is what restores
it. However, that is only correct for those below the typical functioning level. An
intervention that levels-down those who are above the range of typical function
would be difficult to call an enhancement. Such intervention would be damaging
and not beneficial. It would also not be ‘therapeutic’. Therefore, restoration of
species-typical functioning can be called therapy only if it constitutes an overall
improvement
in function or, in other words, an enhancement relative to the state
before the intervention (Harris, 2009).
Another problem with the species-typical functioning view is that species-typical
traits can be reasonably thought to be disabling (Harris 2001; 2007). That could be
the case, for example, when the environment changes in such a way that a given
widespread trait becomes a maladaptation heightening
the risk of serious harm,
which in turn impairs the ability of those possessing this trait to lead full lives.
Consider another example. Dying of the diseases of old age is species-typical and
normal, but is not necessarily desirable. If we could systematically treat diseases of
old age by stimulating the regeneration of tissue and simultaneously switching off
the aging processes in the cells, the longevity of patients could substantially
increase. This would appear to constitute both therapy and enhancement, and the
fact that diseases of old age are species-typical seems
not to be overly relevant
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(Pacholczyk and Harris, 2010). As a result of the discussed problems of the species-
typical view, John Harris has proposed that enhancement may be understood widely
as an improvement brought about by a change in a characteristic or function and an
intervention that is overall beneficial (Harris, 2007; Pacholczyk and Harris, 2010).
In this work I will not attempt to fully consider arguments related to the
treatment/enhancement distinction. The highlighted problems appear to me
sufficient to question its normative force and to think about the reasons we want to
resort to such a distinction in the ethical assessment of biomedicine. We could have
a good reason if the distinction easily translated into
moral appraisal of a given
intervention, for example if it told us something about its permissibility or helped in
decisions about allocation of resources. However, it is unclear that the distinction
can serve this purpose. In their discussion of adult ADHD, Schermer and Bolt
(2011; see also Schermer, 2007) argued that even if such a distinction could be
made for a number of paradigmatic cases, it still leaves us with a large grey area in
which such distinction would not be useful. In this work, I will not ground ethical
argument in the distinction between treatment and enhancement.
Moreover, I will not attempt to clearly distinguish
between the enhancing and
therapeutic uses of potential social and moral enhancers. Wolpe points out that our
understanding of ‘enhancement’ and ‘treatment’ is socially constructed: ‘concepts
such as disease, normalcy, and health are significantly culturally and historically
bound, and thus the result of negotiated values’ (Wolpe, 2002, p. 389). What
conditions are included under the ‘therapy’ umbrella is socially negotiated and can
be re-negotiated. Some scholars raised doubt about whether the expansion of
diagnostic categories such as depression and ADHD is appropriate – perhaps we are
labelling as diseases conditions that should not be treated as such (Conrad, 2007). I
will address some of the ethical concerns related to medicalization in further
chapters. In this introductory chapter it suffices to
note that the presence of
medicalization and de-medicalization, disease mongering and, expanding disease
definitions (Schermer and Bolt, 2011) make the ‘enhancing’ and ‘therapeutic’ uses
to be moving targets. It is not necessary for this work to hit those moving targets,
and the discussion can be enriched by welcoming what Schermer and Bolt (2012)
called the ‘grey area’.
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Thus, I will consider interventions of a similar kind (e.g. aimed at an increase in
empathy, modulation of anger, etc.) regardless of whether
they would attract a
‘therapy’ label or not. What will be of a greater concern in this work is whether the
intervention is a moral enhancement in the sense of making morally better agent
(see s. 1.2.2) or an intervention in a moral sphere that is generally desirable (see s.
1.2.3) as well as the factors that can influence the assessment of other factors that
influence the assessment of overall moral permissibility of the modification.
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