started crying a little. I didn’t look over at him, but no one said anything for a long time,
so his hiccuping cry was the only sound in the room.
I hated hurting him. Most of the time, I could forget about it, but the inexorable truth
is this: They might be glad to have me around, but I was the alpha and the omega of my
parents’ suffering.
Just before the Miracle, when I was in the ICU and it looked like I was going to die and
Mom was telling me it was okay to let go, and I was trying to let go but my lungs kept
searching for air, Mom sobbed something into Dad’s chest that I wish I hadn’t heard, and
that I hope she never finds out that I did hear. She said, “I won’t be a mom anymore.” It
gutted me pretty badly.
I couldn’t stop thinking about that during the whole Cancer Team Meeting. I couldn’t
get it out of my head, how she sounded when she said that, like she would never be okay
again, which probably she wouldn’t.
Anyway, eventually we decided to keep things the same only with more frequent fluid
drainings. At the end, I asked if I could travel to Amsterdam, and Dr. Simons actually and
literally laughed, but then Dr. Maria said, “Why not?” And Simons said, dubiously, “Why
not?” And Dr. Maria said, “Yeah, I don’t see why not. They’ve got oxygen on the planes,
after all.” Dr. Simons said, “Are they just going to gate-check a BiPAP?” And Maria said,
“Yeah, or have one waiting for her.”
“Placing a patient—one of the most promising Phalanxifor survivors, no less—an
eight-hour flight from the only physicians intimately familiar with her case? That’s a
recipe for disaster.”
Dr. Maria shrugged. “It would increase some risks,” she acknowledged, but then
turned to me and said, “But it’s your life.”
Except not really. On the car ride home, my parents agreed: I would not be going to
Amsterdam unless and until there was medical agreement that it would be safe.
* * *
Augustus called that night after dinner. I was already in bed—after dinner had become my
bedtime for the moment—propped up with a gajillion pillows and also Bluie, with my
computer on my lap.
I picked up, saying, “Bad news,” and he said, “Shit, what?”
“I can’t go to Amsterdam. One of my doctors thinks it’s a bad idea.”
He was quiet for a second. “God,” he said. “I should’ve just paid for it myself.
Should’ve just taken you straight from the
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